It’s Just Hair (Part 3): The End Of It.

rachelspangler • January 28, 2016

After years of hair drama, last week offered the opportunity to close it all out. I’d first shaved it off with a friend going through chemo. I’d then spent the next years dealing with the joys and complications following that decision. Then after only a short time of having my hair at a length I felt good about, I decided to grow it out long enough to donate. Now after more than a year of annoyance and lack of control and the gender presentation issues of growing it out, I finally had the chance to be done with the whole (mis)adventure.

I should have been thrilled. I’d been bitching for over a year and measuring obsessively for months. This was the moment I’d waited for. Why didn’t I feel better about it?

Part of my hesitance came from the fact that in order to get more than eight inches off, I would have to go very short. I’d have to put it in multiple ponytails and snip each one off close to the scalp. All the lessons I’d learned the last time I’d had it that short came rushing back. I wasn’t sure I really wanted to go back to making people uncomfortable because that so often led to making them angry. This fear was reinforced by several people saying things like, “I don’t think it’s long enough” (like I hadn’t had the ruler out 7 bazillion times) or “But it’s so pretty long.” “But you look so much nicer.” “Are you sure you really want to do that again? Remember what it looked like last time.” I knew they meant well. Some of them even made a valid non-gendered point in saying that a buzz cut in January in Buffalo might be chilly. Mostly, though, I feared the censorship that would come from once again not fitting into the prescribed boxes people want to associate with a female body. I would no longer look “nice” or “pretty,” and in our culture there are tangible consequences for people who willingly make that choice.

I started talking about not cutting it. I lied and said I maybe wanted to wait until the weather got warmer, but I’d worn it short in winter before and had never been bothered (also I have a stocking cap I really like). I also tried the excuse that if I waited until it got longer I wouldn’t have to cut it quite so short, thus lessening other people’s discomfort, but that didn’t really feel great, either. My head tried to reason, but my gut wasn’t giving up. It had been denied too long in this whole ordeal. The internal battle raged for a few days until I finally made a pro/con list. It looked like this.

The Pro List
More comfortable physically
Easier to take care of
Cheaper to take care of
Takes less time in the morning
More people will touch it when it’s short
Shorter hair aligns with my sense of self
I like the way it looks short

The Con list
Short hair alters other people’s opinions of me

That list hurt my feels a little bit. To see it all laid out there didn’t paint a very nice picture. Everything that should matter came down on the side of cutting it. The one on the side of leaving it long shouldn’t factor in at all. And yet I’d give that one item enough weight to be equal to or greater than everything from my physical comfort to my sense of self.   That’s vanity. It’s scary. And it’s sad.  It’s not the person I want to be.

I wish I could say that did it, that the stark contrast of my pro/con list snapped me back into myself and that I charged forward without trepidation. I didn’t. The list did, however, allow me to examine why other people’s opinions mattered so much and made me begin to think about whose opinion should really matter enough to be considered. My wife’s was clearly important, but she likes it better short (mid-length for me). My son’s matters, but he was also a vote for short. He said I didn’t look like his mom anymore. But outside of the two of them, who had to live with me and who I have to face every day, there was another small group of people who kept coming back into my mind in a way that lifted me up instead of tearing me down.

The thing that got lost in all of this, the thing I lost track of in my own selfishness, is that while the process has been enlightening, it had an end goal outside of me. I set a limit on my hair growing, and I stuck to it even when I hated it because I wanted to donate the hair.   If not for that, I would’ve caved very early on. And honestly even with that I almost caved over the summer. Then at the GCLS conference in New Orleans, a woman I’ve known for years pulled me aside between sessions. She said, “I promised I wasn’t going to cry,” as tears filled her eyes.   She went on to say that what I was doing was such a wonderful thing. Taken aback I honestly had to ask what I was doing. She mentioned my hair, and I remembered that she’d gone through chemo a year earlier. She thanked me profusely and talked about watching her own hair swirl around the drain as she stood in the shower. She talked about how much that moment had frightened her, how demoralizing it had been, how it had shaken her sense of dignity. She said that knowing other people out there did what I was doing meant the world to her. I did not feel proud. I felt sick. I felt selfish and vain. I felt like a spoiled brat for bitching about my hair and what it meant to me when it meant so much more to so many others.

Remembering that conversation and the struggles of other friends in similar positions, I had a very low opinion of myself for pinning so much emphasis on my own looks, and I thought even less of people who tried to pin parts of themselves on my looks. Of all the things I learned along the way, that had the biggest impact. It also gave me the strength for the final attitude adjustment.

You can like my hair or not. I can like my hair or not. The whole world can see what they want or they can sod off. I wish I could say I didn’t care at all what people think, but I do. I just don’t care enough anymore to let it cloud the bigger issues. That night my friends and family gathered around the same way they had when I first shaved it. We laughed, we joked, they took turns with the scissors, and we did something more meaningful than making a fashion statement. It wasn’t even a political statement. It says nothing about you or women in locker rooms or men who won’t hold doors. I am more than my haircut. I am more that what anyone else sees when they look at me. Despite what messages the rest of the world may try to send, in my case it really is just hair, and it really will grow back. But more importantly, when I put aside my vanity and my insecurities, I had the chance to tell someone out there that they are not alone.  That’s the message I want to send.  That’s the person I want to be.

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Facebook memories reminded me that we are approaching the 1 year anniversary of my stem cell donation. On June 1st of 2021, after five days of injections, I underwent a medical procedure to donate stem cells via a line in my chest. Those cells were then transferred into a cancer patient somewhere in Ohio. In addition to feeling like a high tech medical miracle, it was also a huge, awe inspiring experience for me personally, and I’ve spent the time since then feeling so proud and honored to have been in a position to so something so powerful. Then about two weeks ago I received a phone call that my recipient had passed away. I’m gutted. The news has ripped at me in ways I could not have anticipated. This is, in effect, the death of a stranger, a young woman in a different place, whose name I have never known. And now I will never know it. In some ways I don’t feel entitled to this level of grief. In so many ways she’d only ever existed for me as an idea. But we were not nothing to each other. I have prayed for her every day for almost a year, and now I pray for her family. I have wondered and worried over her. I have woken up in the middle of long nights and on Christmas morning thinking about her. Every time I notice the little scar on my chest where the line went into my body, I have felt her with me. Still, I did not know her. And I never will. When the transplant coordinator called, she broke the news quickly, then she said that she needed one more thing from me. She wondered if I might release my remaining stem cells to researchers. I was still a bit rocked back from the start of the conversation, and this request confused me. She explained that there were some cells left over after the transfusion, and they still belonged to me. Legally and ethically, those cells, even after they left my body, are a part of me, and no one can do anything to those extensions of my body without my releasing them. I thought about asking her if anyone had mentioned that to the Supreme Court, but I was too sad in the moment. The anger would come later, but as I’ve pondered that fact, it has helped me at least contextualize the level of grief I am feeling: A woman died with a part of me inside of her. I have tried to temper the dramatic impulse to surrender to the idea that if she died with a part of me inside her, a part of me has died as well, but I’ll admit I have gone there a time or two. What I have leaned on more frequently, though, is that despite not knowing anything other than her rough age and gender, we shared something more fundamental than names or letters. We shared stem cells, the very building blocks of what makes us who we are on a cellular level. With those cells I sent my hopes, my best impulses, my health, my love, the pieces of my blood and bones that allow me to live such a wonderful life in the hopes I could sustain her with those things. Turns out I could not. It has been two weeks of wondering if I could have done more. Fearing that my body, which I have always had a problematic relationship with, has failed me again, and this time betrayed someone else in the process. Worrying someone else paid the price of my insufficiency. Remembering loved ones I have lost to cancer, feeling that pain anew. Imagining the anguish of those who loved her as deeply as I loved the people I lost, and almost crippling empathy for the pain they are living in right now, pain I couldn’t save them from even though I tried. It’s been dark in my brain. My emotions have overwhelmed me often. Sadness ruled the first week. I burst into tears several times at inopportune moments, and cried until my face hurt. This past week anger took over. I will admit, other than a general sense of the injustice of it all, I didn’t understand where the anger came from. Then in session this week, my therapist explained that anger is a common outlet for a sense of helplessness. Helplessness is tied to our fight or flight instincts, and I am a fighter. I suppose a part of me is still trying to fight a battle that has already been lost. I am also still fighting against this slew of emotions I had no way to anticipate. I told her I was afraid of the strength of them. Since she knows me, she told me I needed to take hold of this narrative and find the through lines of what will sustain me as this story’s conclusion becomes a part of the larger story of my life. Even for a writer it was hard task. I know so very little for sure. I will think of this woman for the rest of my life, and I will never have any more closure than I have today. Despite my best effort and intentions, I will only know that she is gone, and she took a part of me with her. What is to be made of all the emotions that come with that? My therapist then asked if regret factored into the mix. I quickly said it did not, and I was surprised she even asked that. She smiled like she knew that, then gently pushed. “If one year ago someone had told you, there’s a woman in need and you will never know her. She needs the very base of your body’s building blocks, it will be a grueling process over several days that will take more out of you physically and emotionally than you had imagined, and all it will give her is 11 more months. 11 months to say what she needs to say, to hug loved ones, to try to make peace. One more Christmas, one more birthday, one more fall, and winter, and spring, but that’s all. She will be gone, and you will live on with the questions, and a connection most people will never comprehend. Would you sign up for that? The answer was yes. It is yes. If I got the same call tomorrow, the answer would be yes that day and every day after. It will always be yes. I suppose that is the through line. That’s the story. It’s part of my story, and it will be, for as long I have cells in my body…or out of it. · If your answer would be “yes” too, and you are eligible to donate, please consider registering with Be The Match , and if you aren't eligible yourself please share this information with the people in your life who might be!
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